Thought I’d get the ball rolling as this is empty!
I’m neamhsplach, I’m undiagnosed but I’m being screened for possible ADHD and/or dyspraxia because of some issues I’ve had with work.
I love Taskmaster and never miss an episode of The Blindboy Podcast. Looking forward to chatting to you all!
dax ( @dax@beehaw.org ) English10•2 years agoHi! I’m 40m with:
- Major depressive disorder, recurrent, in partial remission
- Post-traumatic stress disorder, chronic
- Autistic disorder
The first one I’ve known about and fought, to varying degrees of success, throughout most of adulthood. Sometimes I’m fine; content, motivated, unmedicated, truckin’ along living my best life, and other times I need to ask for help. Luckily my depressive disorder manifests as a lack of executive function and disinterest in everything, so I haven’t had any struggles with self harm or ideation.
The last few years of therapy - I thought primarily only for depression - have made me realize just how much PTSD I had from growing up. I had an awful home life as a child with two parents in way over their head, way too young, and without any good healthy coping strategies of their own. I learned to survive by:
- be afraid of everything all the time
- never ask for help
- never indicate blame
- never suggest any failings in anyone other than self
- make everyone laugh as much as possible; if they think you’re funny, they are less likely to hurt you when they’re angry
- be aware of every movement and emotion people are feeling at all times, no matter what
- be afraid. don’t forget that part.
- oh, and it’s vitally important you never, ever let people know you’re afraid, because that makes them feel bad and they’ll react by justifying your fear
So when I found out I was a high functioning autistic - it finally made everything I was feeling and trying to do throughout my entire life snap into place. I must have known that at some level I had to work 10x harder than someone without my challenges to read people. It was critical that I read people correctly at all times, and any failure could end in disaster. I was exhausted all the time around other people, because I had to be at the absolute top of my game, all of the time, or else. I use italics there because the reality is that was only true for a very small subset of two people, but what you know cerebrally and what you know in your lizard brain are two very different things.
I’ll be untangling this mess for the foreseeable future, but I’m finally starting to extend myself grace and dabbling in some exposure therapy; simple things like “I’m sorry, this isn’t what I ordered” are now possible, albeit hard.
Parsnip8904 ( @Parsnip8904@beehaw.org ) English6•2 years agoGood on you for taking care of yourself :) I’m on my own ASD - PTSD journey too and it has been incredibly hard at times but I’m still here fighting it out :) Every small bit of progress counts.
DJDarren ( @DJDarren@beehaw.org ) English10•2 years agoHowdo champions.
I’m Darren, 42, and only 3 1/2 years diagnosed with ADHD, so it’s been fun trying to wrap my head around the fact that I’m not just kinda useless and lazy, but I’ve been actively fighting my brane’s impulses throughout my life.
Gaywallet (they/it) ( @Gaywallet@beehaw.org ) English10•2 years agoHey all. I’ve introduced myself elsewhere so I’ll keep this fairly short, I have a lot of trouble with loosely defined social concepts like gender and romance. More tightly defined ones like social norms I tend to have an easier job with. I also have aphantasia and am generally just a very odd person, which is part of why I like to identify as a bunny.
lunasloth ( @lunasloth@beehaw.org ) English4•2 years agoVery much same here re: having a lot of trouble with loosely defined social concepts vs easier times with more tightly defined ones. The concept of gender, for example, is something that’s clearly important and meaningful to a lot of people, but I don’t know that I’ll ever understand it myself (so I’ve just landed on a point of acceptance that it matters to others). (Apologies if I’m off topic and you meant something totally different!)
The Cuuuuube ( @Cube6392@beehaw.org ) English9•2 years ago31, bipolar
noxfriend ( @noxfriend@beehaw.org ) English9•2 years agoI’m 31M with Dyspraxia/ASD. Diagnosed since I was very young, grew up with quite severe developmental delays and hypersensitivity etc. Nowadays I mostly get along fine.
I’ll certainly follow this community but I must admit, perhaps controversially, that I’m not fond of the term “neurodiverse”. I’m not just diverse, I have a disability. And if it were possible to cure it, I would.
Parsnip8904 ( @Parsnip8904@beehaw.org ) English6•2 years agoI don’t know if it’s controversial but I struggle with the disability label too, as I masked a lot growing up. I get swayed from one side to the other as time passes.
For me there are parts of me that I don’t want to be neurotypical like how NT small talk, social hierarchy, judgment, group politics etc works. I also like how I view and understand things.
There are parts like executive function deficits, hypersensitivity, difficulty understanding emotions and so on that I would like to get better at. So it’s a mixed bag.
Valen ( @valen@beehaw.org ) English9•2 years agoI’m a retired science teacher and union president. I’ve had a history of depression. I like science fiction.
Hon the unions ✊️ nice to meet you!!
Valen ( @valen@beehaw.org ) English3•2 years agoHi neamhsplach,
I’ve been here 5 days or so, but been busy… Been away for a few days travelling, currently in Coimbra, Portugal. Anyway, I haven’t been doing much union stuff since I retired, but have been boosting union content on Mastodon. I’ve also been writing up stuff to help explain the fediverse and the reddit stuff.
https://babylon4.com/fediverse and https://babylon4.com/rexxit
Since Mastodon isn’t about grabbing your eyeballs and not letting go, when you get to the end of your feed, try closing the browser and doing something else. Take a walk, read a book, talk to your sweetie. It’s much better for your mental health.
I love this part!
mananevergone ( @mananevergone@beehaw.org ) English4•2 years agoYou sound like a fun person to talk to :)
Valen ( @valen@beehaw.org ) English2•2 years agoThanks mananevergone,
Anything in particular you want to chat about? Right now I’m traveling to Coimbra Portugal. It’s very pretty, but also with very steep hills, which my aging feet and knees don’t like.
SanityFM ( @SanityFM@lemmy.world ) English3•2 years agoI like science fiction too! What’s your favourite at the moment?
Valen ( @valen@beehaw.org ) English2•2 years agoHi SanityFM,
I’ve been here 5 days or so, but been busy… Been away for a few days travelling, currently in Coimbra, Portugal. Anyway, I just finished reading Dune for the nth time, because I want it fresh in my mind when the second half of the movie comes out. I’ve also been writing up stuff to help explain the fediverse and the reddit stuff.
https://babylon4.com/fediverse and https://babylon4.com/rexxit
hallettj ( @hallettj@beehaw.org ) English8•2 years agoHi! My neurodivergence is ADHD. The same goes for my wife and two kids. We participated in a little study at one point looking at children of ADHD parents.
micseydel ( @micseydel@lemmy.blahaj.zone ) 8•2 years agoThanks for making this post! I (30NB) was diagnosed with cPSTD a little over a year ago and just this week my therapist is referring me for ASD screening. I find Discord utterly overwhelming and I like the reddit/lemmy kind of forum stuff over twitter/mastodon.
I’m looking forward to lemmy making progress! I’m a SWE and I wish I could contribute but I’m focusing on EMDR and general trauma processing right now 😕
moof ( @moof@lemmy.ml ) English3•2 years agoHi! Good luck with your ASD screening, I hope you get some progress with it.
When you say you prefer Lemmy over Discord… is it Discord in particular you have issues with? Or chat programmes in general? I generally have no problems with chat systems, but I find Discord overwhelming too.
micseydel ( @micseydel@lemmy.blahaj.zone ) English3•2 years agoHi, thanks! I’ve seen occasional Slack channels that are full of animated reactions and gifs, but Discord is so, so much worse.
I love forums because it’s hard to miss something. It’s easy to ignore subforums or mark them as read, and there’s no realtime pressure. With Discord, I feel more likely to miss than catch anything. I’ve had notification badges that after 30 minutes I still couldn’t figure out how to make go away. There’s a mode to disable animations, but you can’t see them again without disabling the mode (why not a button for each gif??). I tried joining a queer Discord but everyone’s pronouns are a different font in a different color in a different size, all the time, with no way for me to simply the UI on my end. It really seems to me like it’s only popular because of mobile apps.
Chris Remington ( @remington@beehaw.org ) English8•2 years agoWe (parents, counselors, teachers etc.) are 99% certain that our eldest son is “on the spectrum”. This has been quite a journey learning about all of this.
We (everyone mentioned above, including our son) are very confident that we’ll be able to find the support that our son needs.
When I’ve asked my eldest son if he “trusts the process” (i.e. finding the support that he needs) he has responded positively.
Parsnip8904 ( @Parsnip8904@beehaw.org ) English8•2 years agoHey people, I’m parsnip, a person on the autism spectrum who also has dyslexia. It’s fun being me, sometimes. I’m fairly good at stuff that I specialise in but have had trouble with workplaces because of the needed socializing/networking/schmoozing. I love working with children and teaching STEM.
Demondice ( @Demondice@beehaw.org ) English8•2 years agoI’m Demondice, but I’m nowhere near as demonic as the name might suggest. 40 years old, and just going through the diagnostic process now as I’m very likely autistic. It’s a bit of an anxiety-inducing time as I worry that I’m just imagining the symptoms and I’m wasting everyone’s time. However, pretty much everyone I speak to tells me that I’m one of the most obviously autistic people they’ve ever met and find the concept of me doubting it hilarious.
Parsnip8904 ( @Parsnip8904@beehaw.org ) English4•2 years agoI felt that way for a long time too but I struggled with the opposite with people not believing I could possibly be autistic. It was a relief to finally get a diagnosis :) I don’t think you’ll be wasting anyone’s time if you ask for an assessment. In fact you’ll be saying yourself, your partner, friends and family, a lot of pain and time.
Kamirose ( @Kamirose@beehaw.org ) English8•2 years agoHi friends! Im 33 with ADHD, diagnosed at age 27 and it explained so much of my childhood. I go in and out if hobbies but currently am into cross stitch, Guild Wars 2, and cozy video games.
lemmyng ( @lemmyng@beehaw.org ) English8•2 years agoParent of a kindergarten aged kid on the spectrum here. Undiagnosed myself, but there are lots of parallels between what my kid is going through and what I experienced as a child, so I have a strong suspicion that I’m likely neurodivergent as well. I intend to mostly follow the community for the sake of my kid to ensure that as a parent I’m doing the best possible to allow them to thrive.
Parsnip8904 ( @Parsnip8904@beehaw.org ) English4•2 years agoEven you being aware is a huge step forward :) My father was in the same position but he wasn’t aware of ASD and leaned on me pretty hard to mask. He is great person but I’ve struggled with being myself as an adult.
bread ( @bread@beehaw.org ) English8•2 years ago16, almost 17, professionally diagnosed as Autistic!!!
BlueSharkEnjoyer ( @BlueSharkEnjoyer@lemmy.blahaj.zone ) 7•2 years agoDiagnosed ADHD (combined type), getting close to finding the right medication.
Undiagnosed autism, I’ve suspected for many years and am trying to get a bit more involved in the community to better understand myself.