Thought I’d get the ball rolling as this is empty!

I’m neamhsplach, I’m undiagnosed but I’m being screened for possible ADHD and/or dyspraxia because of some issues I’ve had with work.

I love Taskmaster and never miss an episode of The Blindboy Podcast. Looking forward to chatting to you all!

  •  dax   ( @dax@beehaw.org ) 
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    11 months ago

    Hi! I’m 40m with:

    • Major depressive disorder, recurrent, in partial remission
    • Post-traumatic stress disorder, chronic
    • Autistic disorder

    The first one I’ve known about and fought, to varying degrees of success, throughout most of adulthood. Sometimes I’m fine; content, motivated, unmedicated, truckin’ along living my best life, and other times I need to ask for help. Luckily my depressive disorder manifests as a lack of executive function and disinterest in everything, so I haven’t had any struggles with self harm or ideation.

    The last few years of therapy - I thought primarily only for depression - have made me realize just how much PTSD I had from growing up. I had an awful home life as a child with two parents in way over their head, way too young, and without any good healthy coping strategies of their own. I learned to survive by:

    • be afraid of everything all the time
    • never ask for help
    • never indicate blame
    • never suggest any failings in anyone other than self
    • make everyone laugh as much as possible; if they think you’re funny, they are less likely to hurt you when they’re angry
    • be aware of every movement and emotion people are feeling at all times, no matter what
    • be afraid. don’t forget that part.
    • oh, and it’s vitally important you never, ever let people know you’re afraid, because that makes them feel bad and they’ll react by justifying your fear

    So when I found out I was a high functioning autistic - it finally made everything I was feeling and trying to do throughout my entire life snap into place. I must have known that at some level I had to work 10x harder than someone without my challenges to read people. It was critical that I read people correctly at all times, and any failure could end in disaster. I was exhausted all the time around other people, because I had to be at the absolute top of my game, all of the time, or else. I use italics there because the reality is that was only true for a very small subset of two people, but what you know cerebrally and what you know in your lizard brain are two very different things.

    I’ll be untangling this mess for the foreseeable future, but I’m finally starting to extend myself grace and dabbling in some exposure therapy; simple things like “I’m sorry, this isn’t what I ordered” are now possible, albeit hard.

  •  DJDarren   ( @DJDarren@beehaw.org ) 
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    1011 months ago

    Howdo champions.

    I’m Darren, 42, and only 3 1/2 years diagnosed with ADHD, so it’s been fun trying to wrap my head around the fact that I’m not just kinda useless and lazy, but I’ve been actively fighting my brane’s impulses throughout my life.

  • Hey all. I’ve introduced myself elsewhere so I’ll keep this fairly short, I have a lot of trouble with loosely defined social concepts like gender and romance. More tightly defined ones like social norms I tend to have an easier job with. I also have aphantasia and am generally just a very odd person, which is part of why I like to identify as a bunny.

    • Very much same here re: having a lot of trouble with loosely defined social concepts vs easier times with more tightly defined ones. The concept of gender, for example, is something that’s clearly important and meaningful to a lot of people, but I don’t know that I’ll ever understand it myself (so I’ve just landed on a point of acceptance that it matters to others). (Apologies if I’m off topic and you meant something totally different!)

  • I’m 31M with Dyspraxia/ASD. Diagnosed since I was very young, grew up with quite severe developmental delays and hypersensitivity etc. Nowadays I mostly get along fine.

    I’ll certainly follow this community but I must admit, perhaps controversially, that I’m not fond of the term “neurodiverse”. I’m not just diverse, I have a disability. And if it were possible to cure it, I would.

    • I don’t know if it’s controversial but I struggle with the disability label too, as I masked a lot growing up. I get swayed from one side to the other as time passes.

      For me there are parts of me that I don’t want to be neurotypical like how NT small talk, social hierarchy, judgment, group politics etc works. I also like how I view and understand things.

      There are parts like executive function deficits, hypersensitivity, difficulty understanding emotions and so on that I would like to get better at. So it’s a mixed bag.

  • Thanks for making this post! I (30NB) was diagnosed with cPSTD a little over a year ago and just this week my therapist is referring me for ASD screening. I find Discord utterly overwhelming and I like the reddit/lemmy kind of forum stuff over twitter/mastodon.

    I’m looking forward to lemmy making progress! I’m a SWE and I wish I could contribute but I’m focusing on EMDR and general trauma processing right now 😕

    •  moof   ( @moof@lemmy.ml ) 
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      311 months ago

      Hi! Good luck with your ASD screening, I hope you get some progress with it.

      When you say you prefer Lemmy over Discord… is it Discord in particular you have issues with? Or chat programmes in general? I generally have no problems with chat systems, but I find Discord overwhelming too.

      • Hi, thanks! I’ve seen occasional Slack channels that are full of animated reactions and gifs, but Discord is so, so much worse.

        I love forums because it’s hard to miss something. It’s easy to ignore subforums or mark them as read, and there’s no realtime pressure. With Discord, I feel more likely to miss than catch anything. I’ve had notification badges that after 30 minutes I still couldn’t figure out how to make go away. There’s a mode to disable animations, but you can’t see them again without disabling the mode (why not a button for each gif??). I tried joining a queer Discord but everyone’s pronouns are a different font in a different color in a different size, all the time, with no way for me to simply the UI on my end. It really seems to me like it’s only popular because of mobile apps.

  • We (parents, counselors, teachers etc.) are 99% certain that our eldest son is “on the spectrum”. This has been quite a journey learning about all of this.

    We (everyone mentioned above, including our son) are very confident that we’ll be able to find the support that our son needs.

    When I’ve asked my eldest son if he “trusts the process” (i.e. finding the support that he needs) he has responded positively.

  • Hey people, I’m parsnip, a person on the autism spectrum who also has dyslexia. It’s fun being me, sometimes. I’m fairly good at stuff that I specialise in but have had trouble with workplaces because of the needed socializing/networking/schmoozing. I love working with children and teaching STEM.

  • I’m Demondice, but I’m nowhere near as demonic as the name might suggest. 40 years old, and just going through the diagnostic process now as I’m very likely autistic. It’s a bit of an anxiety-inducing time as I worry that I’m just imagining the symptoms and I’m wasting everyone’s time. However, pretty much everyone I speak to tells me that I’m one of the most obviously autistic people they’ve ever met and find the concept of me doubting it hilarious.

    • I felt that way for a long time too but I struggled with the opposite with people not believing I could possibly be autistic. It was a relief to finally get a diagnosis :) I don’t think you’ll be wasting anyone’s time if you ask for an assessment. In fact you’ll be saying yourself, your partner, friends and family, a lot of pain and time.

  •  Kamirose   ( @Kamirose@beehaw.org ) 
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    811 months ago

    Hi friends! Im 33 with ADHD, diagnosed at age 27 and it explained so much of my childhood. I go in and out if hobbies but currently am into cross stitch, Guild Wars 2, and cozy video games.

  •  lemmyng   ( @lemmyng@beehaw.org ) 
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    811 months ago

    Parent of a kindergarten aged kid on the spectrum here. Undiagnosed myself, but there are lots of parallels between what my kid is going through and what I experienced as a child, so I have a strong suspicion that I’m likely neurodivergent as well. I intend to mostly follow the community for the sake of my kid to ensure that as a parent I’m doing the best possible to allow them to thrive.

    • Even you being aware is a huge step forward :) My father was in the same position but he wasn’t aware of ASD and leaned on me pretty hard to mask. He is great person but I’ve struggled with being myself as an adult.